Muscular Dystrophy Canada / Dystrophie musculaire Canada

MUSCULAR DYSTROPHY CANADA (MDC) provides direct support to Canadians affected by Neuromuscular disorders that include: offering emotional support for adapting and coping to Canadians living with a neuromuscular disorder or caring for an individual with a neuromuscular disorder navigating and accessing healthcare and community services and financial support providing funding for assistive devices medical equipment and supports as a last resort that are not funded by government sources delivering and facilitating peer support and education through caregiver and family retreats delivering education workshops in social settings including vocational and learning institutions to enhance awareness and providing tools to enhance full participation at work and school for the Canadian neuromuscular community. Provides consult and support to Canadians to obtain a neuromuscular diagnosis accessing neuromuscular treatments and therapies and clinical trials. ALSO MUSCULAR DYSTROPHY CANADA FUNDS PEER-REVIEWED RESEARCH GRANTS TO RESEARCHERS IN UNIVERSITIES OR OTHER INSTITUTIONS IN AREAS RELEVANT TO NEUROMUSCULAR DISORDERS. OUR VISION IS TO FIND A CURE FOR MUSCULAR DYSTROPHY. Until then we provide support services to the individuals their families and their caregivers affected by neuromuscular disorders with the tools and supports to understand their disease and to live their lives to the utmost.

Muscular Dystrophy Canada (MDC) funds translational and clinical neuromuscular research grants. MDC funds clinical and post doctorial neuromuscular fellowships. MDC is a copartner and funder of the Neuromuscular Disease Network of Canada NMD4C Home - The Neuromuscular Disease Network for Canada (neuromuscularnetwork.ca). MDC provides education workshops for the medical community provides education for researchers both early and current career investigates and identifies neuromuscular outcome measures to be used in clinical settings. MDC conducts natural history studies to be used in decision making concerning access to treatments and therapies. Muscular Dystrophy Canada leads and delivers knowledge translation for all network activities. Muscular Dystrophy Canada conducts research through its internal research department to help inform changes to public policy including newborn screening for Spinal Muscular Atrophy early diagnosing of neuromuscular disorders cost of living with a neuromuscular disorder patient journey mapping that highlights pain points emotions and solutions in health care and community service settings from a patient’s perspective. MDC consults and advises government healthcare and community service decision makers on all findings and provides recommendations to enhance public policy.