CureSPG50
Public foundationFoundations·6 TOPHAM RD · EAST YORK, ON · M4B 3K2·BN 796890531RR0001
Last reported: F2024 filing · period ending 2024-03-31
This is a foundation: it mostly grants money to other charities, so program-spending ratios are the wrong lens. We show the share of spending disbursed to qualified donees instead.
What it does — in its own words
Ongoing programs
The existing and continuous initiative aimed to financially support the treatment of numerous children in the US at UTSW using SPG50. CureSPG50 was responsible for both the development and financing of this treatment. With no more affected children in Canada three children – one from Spain and two others from the US – underwent treatment. Extra funds were utilized to sustain the necessary payments for UTSW operations and fulfill outstanding commitments.
New programs
1)To advance education by conducting and/or funding research into the causes and treatments of rare diseases. 2) To promote health by providing necessary health care and accessibility products and services to relieve health conditions for people living with rare diseases in Canada and abroad. 3) To advance education by funding clinical trials of drugs for people living with rare diseases to prevent or relieve their health conditions. 4) To receive and maintain a fund or funds and to apply all or part of the principal and income therefrom from time to time to qualified donees as defined in… Show more
1)To advance education by conducting and/or funding research into the causes and treatments of rare diseases. 2) To promote health by providing necessary health care and accessibility products and services to relieve health conditions for people living with rare diseases in Canada and abroad. 3) To advance education by funding clinical trials of drugs for people living with rare diseases to prevent or relieve their health conditions. 4) To receive and maintain a fund or funds and to apply all or part of the principal and income therefrom from time to time to qualified donees as defined in subsection 149.1(1) of the Income Tax Act (Canada).
Program descriptions from its F2024 T3010 filing, verbatim · self-reported · this is also the text our semantic search matches against. source ↗
Tier 1 — what we computed (open data)
From the charity's own F2024 T3010 filing. Self-reported; not independently verified. You can recompute every figure.
Disbursed to qualified donees
T1 · computed (open data)0%
Per its F2024 T3010, this share of total spending went to other registered charities.
T3010 line 5050 ÷ 5100 · Self-reported on the T3010; not independently verified. source ↗
Operating overhead
T1 · computed (open data)6%
Management, administration, and fundraising as a share of total spending. We treat 5–35% as the typical range; we state the figure, you judge.
T3010 line (5010 + 5020) ÷ 4950 · Self-reported on the T3010; not independently verified. source ↗
Reserves
T1 · computed (open data)11.5 yr
Years current reserves could cover program spending.
Sector quartiles: 0.4 yr / 0.8 yr / 7.5 yr (p25 / median / p90).
T3010 line (4100 + 4140) ÷ 5000 · Self-reported on the T3010; not independently verified. source ↗
Total revenue
T1 · computed (open data)$819K
Last-reported total revenue.
T3010 line 4700 · Self-reported on the T3010; not independently verified. source ↗
Donor-funded
T1 · computed (open data)69%
Share of revenue from receipted donations.
T3010 line 4500 ÷ 4700 · Self-reported on the T3010; not independently verified. source ↗
Government-funded
T1 · computed (open data)0%
Share of revenue from federal, provincial, and municipal sources.
T3010 line 4570 (or 4540+4550+4560) ÷ 4700 · Self-reported on the T3010; not independently verified. source ↗
Over the years
Every figure as filed at each fiscal period end, 2021–2024.
| Period end | Revenue | Cents to cause | Overhead | Reserves |
|---|---|---|---|---|
| 2021-03-31 | $297K | 0¢ | 45% | — |
| 2022-03-31 | $661K | 0¢ | 0% | — |
| 2023-03-31 | $171K | 95¢ | 5% | 2.6 yr |
| 2024-03-31 | $819K | 94¢ | 6% | 11.5 yr |
| trend |
From its T3010 filings (CRA annual releases) · self-reported, not audited by us · when a period is restated in a later release, the newest figures are shown · ✱ = cents-to-cause outside the valid 0–100% range (filing error; not used in rankings). source ↗
★ Tier 2 — Charity Intelligence (analyst-reviewed)
Not rated by Charity Intelligence. Their analysts cover 618 of Canada's 83,761 charities; absence of a rating says nothing about this charity. Our computed figures above stand on their own.
Board of directors
5 directors reported · 2 of 5at arm's length
- Pirovolakis, TerryChair of the Board Presidentarm's length
- Wolkove, JasonSecretarynot at arm's length
- Anastasakis, JohnSecretarynot at arm's length
- Yanku, VictoriaTreasurernot at arm's length
- Kumaritakis, GeorgiaVice-Chair Of The Boardarm's length
From its F2024T3010 filing (public CRA record), as filed. “Arm's length” means not related to other officials by family or business ties. source ↗
Right of reply
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