Skip to main content

CureSPG50

Public foundationFoundations·6 TOPHAM RD · EAST YORK, ON · M4B 3K2·BN 796890531RR0001

Last reported: F2024 filing · period ending 2024-03-31

Give via CanadaHelps ↗We never handle your money and take no fee.

Disbursed to charities T1

0%

of spending, to other registered charities

Operating overhead T1

6%

typical range 5–35%

Reserves T1

11.5 yr

of program spending, in cash and investments

Revenue T1

$819K

not reviewed by an analyst (Charity Intelligence)

— means the filing doesn't include the lines needed; details and sources below.·How to read these figures

This is a foundation: it mostly grants money to other charities, so program-spending ratios are the wrong lens. We show the share of spending disbursed to qualified donees instead.

Common questions

How do I donate to CureSPG50?

You can search for it on CanadaHelps to donate. Charity Compass never handles your money — we only link out to where you can give.

Is CureSPG50 a registered charity?

Per CRA records, it filed a F2024 T3010 return under charity number 796890531RR0001. Registration status can change, so check the CRA charities listing for its current status. Only a currently registered charity can issue an official donation receipt.

Where is CureSPG50 located?

Per its F2024 T3010, its address on file is 6 TOPHAM RD, EAST YORK, ON, M4B 3K2. Source.

What does CureSPG50 do?

In its own words, from its F2024 T3010 filing: "The existing and continuous initiative aimed to financially support the treatment of numerous children in the US at UTSW using SPG50. CureSPG50 was responsible for both the development and financing of this treatment. With no more affected children in Canada three children – one from Spain and two others from the US…" Full program description.

How much does CureSPG50 disburse to other charities?T1

Per its F2024 T3010, 0% of its spending went to other registered charities (self-reported, not independently verified). Full figures.

How big is CureSPG50?T1

Its last-reported revenue was $819K (F2024).

What it does — in its own words

Ongoing programs

The existing and continuous initiative aimed to financially support the treatment of numerous children in the US at UTSW using SPG50. CureSPG50 was responsible for both the development and financing of this treatment. With no more affected children in Canada three children – one from Spain and two others from the US – underwent treatment. Extra funds were utilized to sustain the necessary payments for UTSW operations and fulfill outstanding commitments.

New programs

1)To advance education by conducting and/or funding research into the causes and treatments of rare diseases. 2) To promote health by providing necessary health care and accessibility products and services to relieve health conditions for people living with rare diseases in Canada and abroad. 3) To advance education by funding clinical trials of drugs for people living with rare diseases to prevent or relieve their health conditions. 4) To receive and maintain a fund or funds and to apply all or part of the principal and income therefrom from time to time to qualified donees as defined in… Show more

1)To advance education by conducting and/or funding research into the causes and treatments of rare diseases. 2) To promote health by providing necessary health care and accessibility products and services to relieve health conditions for people living with rare diseases in Canada and abroad. 3) To advance education by funding clinical trials of drugs for people living with rare diseases to prevent or relieve their health conditions. 4) To receive and maintain a fund or funds and to apply all or part of the principal and income therefrom from time to time to qualified donees as defined in subsection 149.1(1) of the Income Tax Act (Canada).

Program descriptions from its F2024 T3010 filing, verbatim · self-reported · this is also the text our semantic search matches against. source ↗

Tier 1 — what we computed (open data)

From the charity's own F2024 T3010 filing. Self-reported; not independently verified. You can recompute every figure. New to these terms? Read what cents to the cause, overhead and reserves mean.

Disbursed to qualified donees

T1 · computed (open data)

0%

Per its F2024 T3010, this share of total spending went to other registered charities.

T3010 line 5050 ÷ 5100 · Self-reported on the T3010; not independently verified. source ↗

Operating overhead

T1 · computed (open data)

6%

Management, administration, and fundraising as a share of total spending. We treat 5–35% as the typical range; we state the figure, you judge.

T3010 line (5010 + 5020) ÷ 4950 · Self-reported on the T3010; not independently verified. source ↗ · what this means

Reserves

T1 · computed (open data)

11.5 yr

Years that cash, bank balances and investments on hand could cover program spending; liabilities and restricted funds are not netted out.

Charities its size (under $1M, 27,629): median 1 yr; 14% hold under half a year. All operating charities: median 0.8 yr.

T3010 line (4100 + 4140) ÷ 5000 · Self-reported on the T3010; not independently verified. source ↗ · what this means

Total revenue

T1 · computed (open data)

$819K

Last-reported total revenue.

T3010 line 4700 · Self-reported on the T3010; not independently verified. source ↗

Donor-funded

T1 · computed (open data)

69%

Share of revenue from receipted donations.

T3010 line 4500 ÷ 4700 · Self-reported on the T3010; not independently verified. source ↗

Government-funded

T1 · computed (open data)

0%

Share of revenue from federal, provincial, and municipal sources.

T3010 line 4570 (or 4540+4550+4560) ÷ 4700 · Self-reported on the T3010; not independently verified. source ↗ · what this means

Where the money comes from

Shares of last-reported revenue, per its F2024 T3010. Self-reported; not independently verified.

  • Receipted donationsT1

    69%

    T3010 4500 ÷ 4700

  • GovernmentT1

    0%

    T3010 4570 (or 4540+4550+4560) ÷ 4700

  • Other revenueT1

    31%

    T3010 remainder ÷ 4700

Self-reported on the T3010; not independently verified. source ↗

★ Tier 2 — Charity Intelligence (analyst-reviewed)

Not rated by Charity Intelligence. Their analysts cover 819 of Canada's 83,761 charities; absence of a rating says nothing about this charity. Our computed figures above stand on their own.

Similar charities

Same CRA category, revenue within 20× of this one, and the closest program descriptions in their own filings. A shortlist to compare, not a ranking.

Figures per each charity's F2024 T3010 · self-reported, not audited by us · ✱= that filing's expense lines don't reconcile · open a profile for sources and caveats.

Board of directors

5 directors reported · 2 of 5at arm's length

  • Pirovolakis, TerryChair of the Board Presidentarm's length
  • Wolkove, JasonSecretarynot at arm's length
  • Anastasakis, JohnSecretarynot at arm's length
  • Yanku, VictoriaTreasurernot at arm's length
  • Kumaritakis, GeorgiaVice-Chair Of The Boardarm's length

From its F2024T3010 filing (public CRA record), as filed. “Arm's length” means not related to other officials by family or business ties. source ↗

Right of reply

This charity hasn't added a response yet. When it does, it appears here, beside the numbers, and is never removed. Represent this charity? Submit a response.

Verify everything: full public record on CharityData.ca ↗ · CRA charities listing ↗