Inflamed Brain Alliance
Charitable organizationEducational organizations (n.e.c.)·PO BOX 71023 RPO SILVER · CALGARY, AB · T3B 5K2·BN 798185542RR0001·website ↗
Last reported: F2024 filing · period ending 2024-03-31
Cents to cause T1
59¢
of each dollar spent, to programs
Operating overhead T1
5%
typical range 5–35%
Reserves T1
—
not in this filing
Revenue T1
$2K
not reviewed by an analyst (Charity Intelligence)
— means the filing doesn't include the lines needed; details and sources below.·How to read these figures
Common questions
How do I donate to Inflamed Brain Alliance?
You can search for it on CanadaHelps or give directly through its own website. Charity Compass never handles your money — we only link out to where you can give.
Is Inflamed Brain Alliance a registered charity?
Per CRA records, it filed a F2024 T3010 return under charity number 798185542RR0001. Registration status can change, so check the CRA charities listing for its current status. Only a currently registered charity can issue an official donation receipt.
Where is Inflamed Brain Alliance located?
Per its F2024 T3010, its address on file is PO BOX 71023 RPO SILVER, CALGARY, AB, T3B 5K2. Source.
What does Inflamed Brain Alliance do?
In its own words, from its F2024 T3010 filing: "Healing Stories Therapy Program Over the past year IBA has developed a robust peer support initiative through the Healing Stories therapy program. Led by a dedicated volunteer Peer Support Lead and supported by five facilitators this program currently provides support to over 50 members across Canada. Our Hope…" Full program description.
How much of Inflamed Brain Alliance's spending goes to programs?T1
Per its F2024 T3010, 59¢ of each dollar it spent went to programs (self-reported, not independently verified). Full figures.
How big is Inflamed Brain Alliance?T1
Its last-reported revenue was $2K (F2024), which places it in Charity Compass's under $1M revenue band, alongside 27,629 other operating charities.
What it does — in its own words
Ongoing programs
Healing Stories Therapy Program Over the past year IBA has developed a robust peer support initiative through the Healing Stories therapy program. Led by a dedicated volunteer Peer Support Lead and supported by five facilitators this program currently provides support to over 50 members across Canada. Our Hope Companions peer support groups are designed for young adults (ages 18-29) caregivers family members and friends impacted by PANS/PANDAS. These informal groups offer emotional social and informational support helping individuals connect with others who share similar experiences. C… Show more
Healing Stories Therapy Program Over the past year IBA has developed a robust peer support initiative through the Healing Stories therapy program. Led by a dedicated volunteer Peer Support Lead and supported by five facilitators this program currently provides support to over 50 members across Canada. Our Hope Companions peer support groups are designed for young adults (ages 18-29) caregivers family members and friends impacted by PANS/PANDAS. These informal groups offer emotional social and informational support helping individuals connect with others who share similar experiences. Currently all support meetings are conducted online with plans to offer online group therapy sessions led by a registered therapist starting next year. Healing Insights Education Program IBA's Healing Insights education program has focused on recruiting medical professionals to teach our eLearning courses on PANS/PANDAS. To facilitate this IBA launched the Clinicians’ Network Canada’s only professional group connecting hands-on providers from multiple disciplines who treat PANS/PANDAS. We have hosted two educational webinars to date including an inaugural session that attracted nearly 500 registrants. We anticipate offering more webinars this year and are working toward CME accreditation for our next event which will be geared toward medical professionals. Healing Discoveries Research Program This year the Healing Discoveries research program made significant strides by collaborating with a real-world data collection company and the University of Calgary to launch the first-ever Canadian PANS Patient Registry. This registry expected to be live by the end of 2024 aims to improve the clinical care pathway for PANS/PANDAS patients. Volunteer Engagement IBA remains a volunteer-driven charity offering various opportunities to serve the PANS/PANDAS community. We have 12-15 active volunteers supporting ongoing initiatives with additional volunteers providing episodic support during events. Ongoing roles include grant writing peer support leadership advocacy digital media storytelling copy editing initiative planning and community engagement. On average each volunteer contributes approximately 5-6 hours per month.
New programs
2023-2024 was our organization's second year of operations so all of our programs are being further established and developed.
Program descriptions from its F2024 T3010 filing, verbatim · self-reported · this is also the text our semantic search matches against. source ↗
Tier 1 — what we computed (open data)
From the charity's own F2024 T3010 filing. Self-reported; not independently verified. You can recompute every figure. New to these terms? Read what cents to the cause, overhead and reserves mean.
59¢
Per its F2024 T3010, 59¢ of each dollar spent went to programs. The rest ran the organization and raised money; higher is not automatically better.
Sector median: 89¢ across 55,155 computed charities; 89¢ among those its size (under $1M).
this charity 59¢ · sector median 89¢ · all 55,155 computed charities
T3010 line 5000 ÷ 4950 · Self-reported on the T3010; not independently verified. source ↗ · what this means
5%
Management, administration, and fundraising as a share of total spending. We treat 5–35% as the typical range; we state the figure, you judge.
T3010 line (5010 + 5020) ÷ 4950 · Self-reported on the T3010; not independently verified. source ↗ · what this means
—
Not reported in this filing: the return leaves out the lines this figure needs, so we show nothing rather than an estimate.
T3010 line (4100 + 4140) ÷ 5000 · Self-reported on the T3010; not independently verified. source ↗ · what this means
Total revenue
T1 · computed (open data)$2K
Last-reported total revenue.
T3010 line 4700 · Self-reported on the T3010; not independently verified. source ↗
Donor-funded
T1 · computed (open data)0%
Share of revenue from receipted donations.
T3010 line 4500 ÷ 4700 · Self-reported on the T3010; not independently verified. source ↗
0%
Share of revenue from federal, provincial, and municipal sources.
T3010 line 4570 (or 4540+4550+4560) ÷ 4700 · Self-reported on the T3010; not independently verified. source ↗ · what this means
Where the money comes from
Shares of last-reported revenue, per its F2024 T3010. Self-reported; not independently verified.
Receipted donationsT1
0%
T3010 4500 ÷ 4700
GovernmentT1
0%
T3010 4570 (or 4540+4550+4560) ÷ 4700
Other revenueT1
100%
T3010 remainder ÷ 4700
Self-reported on the T3010; not independently verified. source ↗
Over the years
Every figure as filed at each fiscal period end, 2023–2024.
| Period end | Revenue | Cents to cause | Overhead | Reserves |
|---|---|---|---|---|
| 2023-03-31 | $12K | 0¢ | 0% | — |
| 2024-03-31 | $2K | 59¢ | 5% | — |
| trend |
Swipe sideways to see every column.
From its T3010 filings (CRA annual releases) · self-reported, not audited by us · when a period is restated in a later release, the newest figures are shown · ✱ = cents-to-cause outside the valid 0–100% range (filing error; not used in rankings). source ↗
★ Tier 2 — Charity Intelligence (analyst-reviewed)
Not rated by Charity Intelligence. Their analysts cover 819 of Canada's 83,761 charities; absence of a rating says nothing about this charity. Our computed figures above stand on their own.
Board of directors
6 directors reported · 4 of 6at arm's length
- Deschenes, RichardCo-Chairnot at arm's length
- Deschenes, MarnieCo-Chairnot at arm's length
- Park, StephenTreasurerarm's length
- Rodenkirchen, StephanieSecretaryarm's length
- Gudeon, NinaDirectorarm's length
- Noseworthy, MaryDirectorarm's length
From its F2024T3010 filing (public CRA record), as filed. “Arm's length” means not related to other officials by family or business ties. source ↗
Right of reply
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Verify everything: full public record on CharityData.ca ↗ · CRA charities listing ↗