Paraplégie spastique Financement - Recherche - Traitement Spastic paraplegia Funding - Research - Treatment
Private foundationFoundations·2459 CARLSEN AVE · OTTAWA, ON · K1V 8G2·BN 800238727RR0001
Last reported: F2024 filing · period ending 2024-08-31
This is a foundation: it mostly grants money to other charities, so program-spending ratios are the wrong lens. We show the share of spending disbursed to qualified donees instead.
What it does — in its own words
Ongoing programs
The basic objective of funding medical research into hereditary spastic paraplegia (HSP) through fundraising efforts still holds true. Although the efforts of the foundation were very limited again this year they did exist - mostly based on electronic means. This year a research collaboration was established with a Canadian university and a cohort of HSP subjects was established to advance medical research into this rare movement disorder.
New programs
Research Project with the NEURO in McGill (Institut et hôpital neurologique de Montréal) I have been working on a research project with the people in charge of the 'C-BIG open biobank' at the Montreal Neurological Institute and Hospital also called the NEURO. C-BIG open biobank stands for 'Clinical Biospecimen Imaging and Genetic Repository' and it is housed in the NEURO in Montreal's McGill University. The NEURO is a world-renowned center of expertise in the field of HSP research with the goal of accelerating discoveries and curing HSP. The C-BIG biobank has been in operation for several y… Show more
Research Project with the NEURO in McGill (Institut et hôpital neurologique de Montréal) I have been working on a research project with the people in charge of the 'C-BIG open biobank' at the Montreal Neurological Institute and Hospital also called the NEURO. C-BIG open biobank stands for 'Clinical Biospecimen Imaging and Genetic Repository' and it is housed in the NEURO in Montreal's McGill University. The NEURO is a world-renowned center of expertise in the field of HSP research with the goal of accelerating discoveries and curing HSP. The C-BIG biobank has been in operation for several years now. However to date it does not have any samples specific to a group of people with HSP. Nor do any exist elsewhere in Canada. This HSP project fills this gap by creating a cohort of HSP patients donating their DNA for further processing and general research. This project will thereby allow researchers to have a very broad view of HSP. Using human DNA researchers will be able to define the different pathways of the disease. HSP patient participation will also allow the HSP community to greatly contribute to fundamental research. This will also prepare doctors and clinicians for future clinical trials/ drugable outcomes/ treatments/ cures.
Program descriptions from its F2024 T3010 filing, verbatim · self-reported · this is also the text our semantic search matches against. source ↗
Tier 1 — what we computed (open data)
From the charity's own F2024 T3010 filing. Self-reported; not independently verified. You can recompute every figure.
Disbursed to qualified donees
T1 · computed (open data)100%
Per its F2024 T3010, this share of total spending went to other registered charities.
T3010 line 5050 ÷ 5100 · Self-reported on the T3010; not independently verified. source ↗
Operating overhead
T1 · computed (open data)—
Management, administration, and fundraising as a share of total spending. We treat 5–35% as the typical range; we state the figure, you judge.
T3010 line (5010 + 5020) ÷ 4950 · Self-reported on the T3010; not independently verified. source ↗
Reserves
T1 · computed (open data)—
Years current reserves could cover program spending.
Sector quartiles: 0.4 yr / 0.8 yr / 7.5 yr (p25 / median / p90).
T3010 line (4100 + 4140) ÷ 5000 · Self-reported on the T3010; not independently verified. source ↗
Total revenue
T1 · computed (open data)$5K
Last-reported total revenue.
T3010 line 4700 · Self-reported on the T3010; not independently verified. source ↗
Donor-funded
T1 · computed (open data)100%
Share of revenue from receipted donations.
T3010 line 4500 ÷ 4700 · Self-reported on the T3010; not independently verified. source ↗
Government-funded
T1 · computed (open data)0%
Share of revenue from federal, provincial, and municipal sources.
T3010 line 4570 (or 4540+4550+4560) ÷ 4700 · Self-reported on the T3010; not independently verified. source ↗
Over the years
Every figure as filed at each fiscal period end, 2019–2024.
| Period end | Revenue | Cents to cause | Overhead | Reserves |
|---|---|---|---|---|
| 2019-08-31 | $15K | 7133¢✱ | — | 0.1 yr |
| 2020-08-31 | $1K | — | — | — |
| 2021-08-31 | $1K | — | — | — |
| 2022-08-31 | $1K | 0¢ | 0% | — |
| 2023-08-31 | $6K | — | — | — |
| 2024-08-31 | $5K | — | — | — |
| trend |
From its T3010 filings (CRA annual releases) · self-reported, not audited by us · when a period is restated in a later release, the newest figures are shown · ✱ = cents-to-cause outside the valid 0–100% range (filing error; not used in rankings). source ↗
★ Tier 2 — Charity Intelligence (analyst-reviewed)
Not rated by Charity Intelligence. Their analysts cover 618 of Canada's 83,761 charities; absence of a rating says nothing about this charity. Our computed figures above stand on their own.
Board of directors
4 directors reported · 1 of 4at arm's length
- McLaren, James HDirectornot at arm's length
- Lafontaine, Dianenot at arm's length
- Desmarais-Trépanier, JulieOriginal founderarm's length
- Lafontaine, LindaPresidentnot at arm's length
From its F2024T3010 filing (public CRA record), as filed. “Arm's length” means not related to other officials by family or business ties. source ↗
Right of reply
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