CANADIAN ASSOCIATION FOR PORPHYRIA INC./ASSOCIATION CANADIENNE DE PORPHYRIE INC.
Charitable organizationCore health care·13604 108 AVE NW · EDMONTON, AB · T5M 2C8·BN 812825735RR0001·website ↗
Last reported: F2024 filing · period ending 2024-12-31
What it does — in its own words
Ongoing programs
ASSISTING IN THE DEVELOPMENT OF TREATMENT GUIDELINES. PRINTABLE RESOURCES FOR PATIENTS CAREGIVERS AND HCP'S AWARENESS VIA WEBSITE AND SOCIAL MEDIA PROVIDING RESOURCES PATIENTS CAREGIVERS AND HEALTH CARE PROFESSIONALS AFFECTED BY PORPHYRIA LIGHT UP AWARENESS CAMPAIGN
New programs
MENTAL HEALTH DISCUSSIONS AROUND RARE DISEASE AND CHRONIC ILLNESS EXPANDING AWARENESS CAMPAIGNS POLICY DEVELOPMENT
Program descriptions from its F2024 T3010 filing, verbatim · self-reported · this is also the text our semantic search matches against. source ↗
Tier 1 — what we computed (open data)
From the charity's own F2024 T3010 filing. Self-reported; not independently verified. You can recompute every figure.
Cents to cause
T1 · computed (open data)88¢
Per its F2024 T3010, 88¢ of each dollar spent went to programs.
Sector median: 89¢ across 55,155 computed charities.
T3010 line 5000 ÷ 4950 · Self-reported on the T3010; not independently verified. source ↗
Operating overhead
T1 · computed (open data)12%
Management, administration, and fundraising as a share of total spending. We treat 5–35% as the typical range; we state the figure, you judge.
T3010 line (5010 + 5020) ÷ 4950 · Self-reported on the T3010; not independently verified. source ↗
Reserves
T1 · computed (open data)—
Years current reserves could cover program spending.
Sector quartiles: 0.4 yr / 0.8 yr / 7.5 yr (p25 / median / p90).
T3010 line (4100 + 4140) ÷ 5000 · Self-reported on the T3010; not independently verified. source ↗
Total revenue
T1 · computed (open data)$78K
Last-reported total revenue.
T3010 line 4700 · Self-reported on the T3010; not independently verified. source ↗
Donor-funded
T1 · computed (open data)1%
Share of revenue from receipted donations.
T3010 line 4500 ÷ 4700 · Self-reported on the T3010; not independently verified. source ↗
Government-funded
T1 · computed (open data)0%
Share of revenue from federal, provincial, and municipal sources.
T3010 line 4570 (or 4540+4550+4560) ÷ 4700 · Self-reported on the T3010; not independently verified. source ↗
Over the years
Every figure as filed at each fiscal period end, 2019–2024.
| Period end | Revenue | Cents to cause | Overhead | Reserves |
|---|---|---|---|---|
| 2019-12-31 | $7K | 93¢ | 6% | — |
| 2020-12-31 | $81K | 70¢ | 30% | — |
| 2021-12-31 | $3K | 94¢ | 2% | 2.7 yr |
| 2022-12-31 | $13K | — | — | — |
| 2023-12-31 | $8K | 58¢ | 42% | — |
| 2024-12-31 | $78K | 88¢ | 12% | — |
| trend |
From its T3010 filings (CRA annual releases) · self-reported, not audited by us · when a period is restated in a later release, the newest figures are shown · ✱ = cents-to-cause outside the valid 0–100% range (filing error; not used in rankings). source ↗
★ Tier 2 — Charity Intelligence (analyst-reviewed)
Not rated by Charity Intelligence. Their analysts cover 618 of Canada's 83,761 charities; absence of a rating says nothing about this charity. Our computed figures above stand on their own.
Board of directors
12 directors reported · 4 of 12at arm's length
- CAPON, MICHELLEPRESIDENTnot at arm's length
- BURNS, KELLYVICE PRESIDENTnot at arm's length
- REIMER, JEANNIESECRETARYnot at arm's length
- WILCOX, DERRYTREASURERarm's length
- WILCOX, TAMMYDIRECTORarm's length
- WATSON, LINDSEYDIRECTORarm's length
- BOWIE, JIMDIRECTORnot at arm's length
- DIXON, ERINDIRECTORnot at arm's length
- MCCOOL, IANDIRECTORnot at arm's length
- DESGAGNES, MARTINEDIRECTOR
- FRICKER, NICOLEDIRECTORarm's length
- HORN, JOHNDIRECTORnot at arm's length
From its F2024T3010 filing (public CRA record), as filed. “Arm's length” means not related to other officials by family or business ties. source ↗
Right of reply
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